Hi all

well got my uptodate letter from Rheumy,copy for me and for gp

so booked in for next week see Gp.

It Offically on paper,weird thing be excited about.
a postive outcome that diagnsois now in writing,well there bit slow told me March letter comes 1 month later.

anyway.
RA with Systemic lupus Erythematosus as overlap,Fibromyaliga.

previsouly told no systemic involvement this is now changed to some systemic problems from lupus,so gp will need give me strong suncream .

RA is my primary conditon.
i can have some anti inflammtoires now not on MTX,and the previsouly told 6 month wait for ttcc has been changed to 9 months.


currently RA casuing fair amount pain to alot in hands,focused on losing weight,gentle exercise got swimsuit.
only change really is to wear strong suncream yes even cloudy days,even inside house.wont g into that more detail as this for RA side things.

But RA main issue.
PLanequil is great no problems on new dose.

feet,hands,knees,shoulders.
still some elbow problems.

so still going RA clinic and feel secure in getting good care for all above.

just chased up my shower still not installed.

so thats me for now.
mornings and evenings are worst RA wise.
Rheumy watching me for changes,suspected a full switch to just sle at some point im hoping not.but whatver im dealt support is key.


love to you all,apolgies been quiet but im in tansiton faze of acceptance.after thinking i may not have RA after being told i had.
Im also fighting to try help my father with his health so far not wining!!
It has shown its ugly head more consitently so no doubt there now from Rheumy.

Melly

A lot to think about there Melly. As Barbara says, at least you finally know what you are dealing with. Take care.

Julie

Just having very quick catch up & sending big hugs to you Melly
Good to hear about your positive thinking - keep thinking like that my lovely and who knows what may happen xxxxx
Take care, love ~ Liz xxxxx

Hi Mel
Just catching up. Pleased you are moving forward and I will soon have a buddy on the ttc trail !!
Take care
Big hugs
Clairexx

Hi
oh yes Claire heres to that

well yes overlap is secondary but they are clearly saying it will switch that lupus will become the primary heres hoping they wrong,for me as person both are just as much trouble as each other.

for now im just focused on trying to prevent lupus and/Ra,exercise and rest eating well etc.
at same time trying finish my Maths course.
knucles fingers rather red,knnes not to bad feel like want dislocate,toes red painful.
so see what gp says think as witch to steriod tablets may be needed soon.

trying hold off on that idea for now.

grr

Hi Melly

What lovely positive posts Melly, a woman after my own heart! You are taking it all in you stride and you will beat this whole thing whatever it decides to end up as . As others have said 9 months until you ttc is too long and very unnecessary. Meds will be well out of your system long before then. Hope all goes well with your GP and your questions are answered.

How's your Dad? Are you winning yet?

Take care Melly,

Lyn x